Not so mighty fibromite

October 24, 2009 2 comments

I’m really discouraged today.  I woke up stiff with a band of pain around my abdomen about kidney height.  And anxious as all hell.  The lists of foods and food categories that are safe and unsafe are spinning around in my head like Dorthy’s twister.

I need to get a grip on myself.

This corn thing is much more overwhelming than the gluten.  How I’m going to go about this is beyond me at the moment…except to say for today, I can eat oatmeal, sweet potato, chicken and veggies.  Basically.  That can be my diet for today.  I don’t think there is anything bad in these things (my oatmeal is GF).  I could probably find many things wrong with the chicken but I’m drawing a line.

And if the truth be told, I ate pepper jack cheese last night like I was flipping off a stranger.  Boldly and aggressively even while knowing it was wrong and I would feel shitty later.  Sigh…

Oh, and get this.  When I was taking tramadol for my fibromyalgia it would work less and less so I’d take more and more.  (any addict will tell you how that works!)  The last couple of years I took 6 pills a day.  And still had pain.  And brain fog up the butt.  This last spring I went slowly off the tramadol and felt tremendously better.  I am still taking the hydrocodone but it works really well and I have little to no side effects.  Except dependency but I can deal with that.

Anyway…….I googled tramadol and guess what the first “inert” ingrediant is?  Cornstarch!  I could not find any evidence of cornstarch in the hydrocodone.

This is crazy…

So all signs point to corn and it’s devil spawn of derivatives.  Last night I went through the cupboard telling Kevin in an increasingly rising voice, “oh god, this has corn in it, this has corn in it, etc, etc.”  Until he suggested I might want to calm down.

Just for today (thank you AA) I know I can eat unprocessed meat (if there is such a thing), vegetables (except nightshades) and fruits (except citrus).  That’s not too complicated, is it?

I’ve gotta laugh or I’m gonna cry…..


A big a-ha moment

October 23, 2009 2 comments

So I’m dinking around on the web, not feeling good because of the tomatoes.  And I decide to investigate corn.  I’ve been really focused on gluten free and I know nightshade plants such as tomato get me bad.  But remember when I had corn one evening?  Of all the things I’ve challenged and gotten a reaction to, it was the worst.

I’m reading these corn allergen/intolerance sites and things start falling into place.  When I’ve been eating my baking I get a stinging throat.  Not a big body thing but a nasty sting.  Well, all my baking has vanilla and guess what kind of alcohol they make it with?  Yep, corn.  Ditto baking powder.  And some corn sensitive people can’t do sorghum or xanthan.  All in my baking.

Plus I’ve had several surgeries in my life.  Everytime I get sick as a dog and always have problems right afterward.  I definitely vomit my guts out, even with a surgery that is supposed to be a day surgery.  I end up staying overnight at least.

Guess what was in my IV the whole time?  Glucose.  Made from corn.

I’m not kidding.

So next up on this Diet Experiment path is focus on eliminating corn and it’s bajillion derivatives.  I’ve got to admit it’s a little overwhelming.  But maybe if I clear out corn, I’ll find I can bring other stuff back in.  One can always hope.

Makes me wonder if tramadol has a cornstarch base or something because I got so much better after I stopped taking it.

Next week’s doctor’s visit is going to be good.

Addendum to Ugg..

October 23, 2009 Leave a comment

You know, maybe it would be good to re-read my own blog.  I decided to hit the tag “pain” and read the entries…maybe there was a clear pattern.

Yeah, whatever, because my entry dated the 15th of this month (found here) talks all about the pain I had from tomatoes.  Seriously.

Okay so note to self.  You can NOT eat TOMATOES, Jacki!!!


Ugg…I fibro’d myself

October 23, 2009 Leave a comment

All three kids were here last night for dinner so I wanted to make something special  (and cheap).  So I picked up some beef ribs and decided to make my own bbq-like sauce.  I’ve been doing so well that I got a little cocky thinking I could probably try making a tomato based sauce.  And if it’s done from scratch it would probably be safe.


It tasted okay, nowhere near as sweet and mellow as cheap store bought.  Man, they must have a ton of sugars in theirs.  The kids and Kevin liked it and the ribs were snarfed up in short order.

Then I woke up this morning.  And guess what?  Fibromyalgia…all over.  It’s kinda amazing if it didn’t feel so crappy.  A generous serving of tomato sauce and it causes my whole body to ache and be stiff.

The score is nightshade plants 1, Jacki 0.

At least it was a clear reaction and not one of those vague “I don’t feel too good but that’s about it” reactions.  So…no more tomatoes.  And that should probably go for potatoes and peppers.

Fine with me.  Now all I have to do is work this out of my system.  Ugg.

A little bit of everything

October 22, 2009 Leave a comment

I was reading Elana’s Pantry and came across this post.  Another woman battling fibromyalgia and chronic fatigue who is seeking improvement via her diet.  It’s crazy, isn’t it?  How many of us are out here suffering, losing our hopes and dreams, and living in daily pain?  Who knows if our fibro, etc, caused our food intolerances or our food intolerances caused disease?  I have no idea.  But I’ve felt the difference in my body enough to know they are connected somehow.

It’s amazing how many people I’m reading about who are managing their fibromyalgia, chronic fatigue, epstein-barr, lyme disease, ms and lupus through dietary changes.  It just blows me away.  Why aren’t more people talking about this?  Am I just listening in the wrong places?

I think about the heightened suicide rate in people with fibromyalgia.  Or the women with fibro that went to Dr. Kevorkian to die because they had no hope.  And I was getting there…I was getting to the place of “what’s the point?”  If living means pain and only being able to do the things I love about 5% of the time then how long do I really want to go on?

Well, help came in the form of someone else with fibromyalgia who told me that I had to change my diet.  It took me over a year to screw up the guts to try it.  That’s crazy, isn’t it?  I just never thought it would work for ME.

Even though I currently have shingles and have a long way to go on this road of tuning into my body, I feel better than I have in years.  It’s crazy…and wonderful, too.

Okay, a little food.  The other day I made something I’m gonna call:

Sticky Almonds

  • 1 to 2 cups almonds
  • 1/2 cup olive oil
  • agave syrup
  • sea salt
  • optional spices…I used cinnamon and a little chili powder.

Preheat the oven to 425 degrees F.

Mix the olive oil, the agave and the spices in a small mixing bowl.  Dump in the almonds and stir to coat them.  Spread them out in a single layer on parchment on a baking sheet.  This is when I sprinkled sea salt over them.  Stick them in the hot oven for about 12 minutes…but watch them because you don’t want to burn them.  Just get them warm and fragrant and utterly delicious.

Let them cool and then try not to eat them all at once.  Ha!

This morning I made myself gluten-free oatmeal with raisins, dried cranberries, a little almond milk and mashed up Sticky Almonds.

It was a little taste of heaven.  Thank you.

Rice tortilla chips

October 21, 2009 Leave a comment

Leftover dried out rice tortillas, fried in about one-sixteenth of an inch of light olive oil.  Set in an open phone book to drain and salted with the big sea salt.   Nummmm…  tasted all greasy and salty and crispy!  I’ve been missing crispy.  I’m sure it’s not low calorie but I don’t really care.  I added the pepper jack cheese and zapped it in the microwave for one minute.

Now that’s a lunch.

Hey, am I the only around drowning in phone books?  I swear we get 3 a year or more including a little tiny one…what’s that?  Now phone books are my go-to waste paper.  Gluing in the studio?  Pull out some phone book pages.  Ditto painting little things.  Need something to put down before you peel those veggies?  Yep, tear out some phone book pages; they even compost.  When I was doing crafts with kids I always had plenty of need for waste paper so voila!  Phone books.

But I digress.

Last night I put the chicken in the oven for about 90 minutes, only to find it wasn’t cooked at all.  Warmed, yes.  Cooked, no.  I hope my oven isn’t going out.  I turned it up and cooked it some more but that didn’t work.  Finally, as we were all starving, I put in on the stovetop and boiled the h*ll out of it.  That worked.  I’ve been using those extra large packages of chicken thighs which I can get for $.99/lb.  They are the simplest to debone…just one bone and a bit of gristle at the end.  Easy.

Maybe I need to clean my oven?  It’s not like it would be a chore…it’s a self cleaner that actually works.  Plus, if that didn’t work I would know there was something seriously wrong with it.  Kevin says he’ll take a look but it might be more….ummm…timely for me to just give the cleaning a try.

Know what I mean?

Send in the cheese

October 20, 2009 Leave a comment

Pepper jack cheese even.  And it tasted great.  Since I’ve been using eggs without too much of a problem, I decided to try some cheese.  Not to excess…just a little snack on the side with my chili.  So far, so good.

I’m having body pain but I think it might just be from the shingles.  I’m still doing better than I did before the Diet Experiment even with the shingles.  Go figure.

I’m tired and worn out today but still managed to do some errands and work in the studio.  For dinner, I just threw some chicken thighs in a pot, ditto quartered onions and drizzled olive oil spiked with spices over the whole thing.  It will make a lot of high protein dinner served with some fresh green beans that arrived in our Community Supported Agriculture produce box from Fresh Abundance. Ahhh…nothing better than fresh, locally grown fruits and veggies delivered right to your door.  I love it.

So it’s a short one for today.  Still tired but always hungry.

Story of my life.